Your Voice.Your Story.Your Community.
Voices for Sickle Cell advocates for the community while creating a trusted space for warriors, caregivers, families, and allies to share their experiences, find resources, and lead change.
We advocate for the sickle cell community, and create space for the community to be heard.
What brings you here today?
I want to be heard
For warriors, caregivers, parents, siblings, and allies with something to say.
Share Your Story
I need support
For anyone looking for practical help, education, or connection.
Find Resources
I want to help create change
For volunteers, advocates, donors, healthcare allies, and partners.
Take Action
A whole life, lived out loud.
Sickle cell is part of the story. So are graduations, road trips, Sunday dinners, new jobs, and dancing in the kitchen. Here is help for living all of it.
Living well with sickle cell
Day-to-day life, keeping up with care, and planning ahead.
Read the guideMind and body
Mental health and wellness, without judgment.
Explore ResourcesSchool, work, and big plans
Accommodations and conversations that open doors.
Explore ResourcesJoy is part of the story
Wins, milestones, and good days, in the community’s own words.
Hear Our VoicesFind a Voices for Sickle Cell group near you.
Local groups and chapters are led by people in your own community. Meet in person or online.
No group in your area yet? You can start one.
Voices for Sickle Cell [City]
Next meeting: second Saturday, 10:00 am. In person and online.
See the chapter pageReal Stories. Real Strength. Real Change.
My strength is not measured by how little pain I show. It is measured by how I continue to live, love, and speak up.
Living with invisible pain
Read Their StoryCaregiver Corner
ListenGrowing up with sickle cell
Read Their StoryOne Mission. Three Ways We Move Forward.
Our mission: to raise awareness, amplify voices, and support the Sickle Cell community through education, advocacy, and collaboration.
Voices for Sickle Cell exists to ensure that warriors, caregivers, families, and advocates are not navigating this journey alone. We create spaces for stories to be heard, information to be shared, and communities to come together around meaningful action.
Educate
Clear information and practical resources for warriors, families, caregivers, and allies.
Explore ResourcesAdvocate
Use your voice to build awareness, improve access, and create lasting change.
Take ActionCollaborate
Build stronger connections through events, partnerships, and community support.
Join the CommunityYou Spoke. We’re Listening.
This month’s community question Sample
What support do families need most?
What we heard
Families need more help navigating school accommodations and transition-to-adult-care planning.
What we are doing
Developing a caregiver resource guide and hosting a virtual community discussion with local partners.
Coming up
Our Commitment
We will share numbers when we have results we can verify. Until then, this is what we promise.
- Center lived experience
- Make trusted information easier to access
- Create opportunities for advocacy
- Connect the community to support
- Build partnerships that expand reach
Support the Voices Behind the Mission.
Your contribution helps expand education, community connection, advocacy efforts, and opportunities for the sickle cell community to be seen and heard.
Nothing about our community without our community.
Stay close to the work
Stories, events, and ways to act. A few emails a month.
Voices forSickle Cell
To raise awareness, amplify voices, and support the Sickle Cell community through education, advocacy, and collaboration.
Explore
Voices for Sickle Cell provides community education and resource information. It does not provide medical advice, diagnosis, or treatment. For urgent medical concerns, contact your healthcare provider or call 911.
SKY cannot give medical advice. For symptoms or treatment questions, contact your care team. In an emergency, call 911.